Ayaz, chromosome 6 delation

Help Ayaz
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Ayaz
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€145.00
raised out of €10,000.00 goal
1%
ends 04 Apr 2020

  • created by
    Silje Solberg Ayhan

Help Ayaz

Hi Everyone!

This is Our youngest son Ayaz.
When he was born, he gave us all a shock.. we did not know that he would have a cliff, but it turned out to be only a bit of his condition.. Ayaz has chromosome 6 deletion. 6p25.1p23 to be excact.
We Just dont know yet if this is the only thing that is, or if it Will be more. They are still testing for different syndromes. For now they have found out that it is no syndromes for now! We are so Lucky to get this information!
But our biggest issue for now is that er dont want to send this boy to kindergarden at this age. Ayaz still dosent like going to plages with alot of People and a lot of noice, he gets really tiered and cryes alot.. but this is not possible the way it is right now. The economy dosent allow one of us to stay home, so we try this. A place Where you can help us get the oppourtunite to stay home with our son for his best.

He already hangs behind children his age, and we dont know what to do if he has to go to kindergarden when we are actually making progresse at home!
The things that are "wrong" with our son is;
-total Lip/gaw/palate cliff
-coloboma on both eyes, but hopfully one Will be good, and the other not so bad.
- small Heart fail
- hearing is unknown How Well it Will be.
- tows not splitt proparly
- skinn taggs
-low ears
-eyes far appart


So, i dont know what to do with this, but it would be Nice to have "something to go on" when it comes to Ayaz.
So if you would help by giring 1 €, it Will all help...

Also, if we dont need the money we Will donate it to c6 research πŸ’šπŸ’™πŸ’›πŸ’œ

So if you can sparer 1 € or 2, that Will help us to get the time to help Ayaz the best way we mean is the best..

πŸ’œπŸ’›πŸ’™πŸ’šπŸ’Ž



  • SynnΓΈve

    SynnΓΈve Gjestad made a contribution   02 Mar 2017

    Lykke til med Ayaz β™‘ Han er heldig som har sa flotte foreldre! Haper han far utvikle seg og bli mer trygg fΓΈr han starter i bhg'en :)
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   02 Mar 2017

    Tusen takk SynnΓΈve πŸ’™πŸ’š hΓ₯per alt er bra med deg! Tenker ofte pΓ₯ deg og tiden vΓ₯r i statene! HΓ₯per virkelig vi sees igjen en gang πŸ’™πŸ’šπŸ’› og tusen takk πŸ’™πŸ’šπŸ’›
    Post a reply   
  • Marta

    Marta Herrero made a contribution   14 Feb 2017

    Good luck! Your kid is lovely!
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   14 Feb 2017

    Thank you πŸ’™πŸ’œπŸ’š
    Post a reply   
  • Egil

    Egil Hollund made a contribution   14 Feb 2017

    Lykke til - Han trenger all den hjelp han kan fa. Mvh Egil
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   14 Feb 2017

    Tusen takk πŸ’œπŸ’›πŸ’™πŸ’š
    Post a reply   
  • Karianne

    Karianne Finngaard made a contribution   13 Feb 2017

    Haper det er mange som vil bidra!!!
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   14 Feb 2017

    Tusen takk πŸ’œπŸ’›πŸ’™πŸ’š
    Post a reply   
  • Lone Helle

    Lone Helle Hansen made a contribution   19 Jan 2017

    πŸ’™β€
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   19 Jan 2017

    Tusen takk Lone πŸ’™πŸ’œπŸ’–
    Post a reply   
  • Lenora

    Lenora Munsey made a contribution   09 Jan 2017

    Lenora has made a contribution
    Post a reply   
    Silje Solberg

    Silje Solberg Ayhan replied to a comment   18 Jan 2017

    Thank you πŸ’™πŸ’œπŸ’š
    Post a reply   
  • Silje Solberg

    Silje Solberg Ayhan made a contribution   04 Jan 2017

    πŸ’š
    Post a reply   
  • Silje Solberg

    Silje Solberg Ayhan made a contribution   04 Jan 2017

    πŸ’š
    Post a reply   


Invitees (6)   
Lenora
Lone Helle
Karianne
Egil
Marta
SynnΓΈve